Additional Resources

The Kidney Foundation of Canada

If you are experiencing challenges with kidney disease or renal insufficiency, the programs, services and online information available through The Kidney Foundation of Canada may be of help. go »

Other Kidney Cancer Sites

Canadian Cancer Society -- Kidney Cancer
The Canadian Cancer Society website provides some information describing kidney cancer and support services available. go »

Kidney Cancer Care
McMaster University - St. Joseph’s Healthcare Kidney Cancer Centre of Excellence (KCCE) has recently created a new website. This is a patient-oriented portal providing information and links regarding the cutting edge management of kidney cancer. go »

Kidney Cancer Konnection
This site is for all those seeking information about kidney cancer. The site has a chat room which is open 24/7 - but they have also been offering weekly scheduled chats for patients and family members for the past 10 years.  go »

Living with Kidney Cancer
Our "Living With..." pages are a place to share experiences about living with a certain condition, disease, disorder, or illness and for loved ones of those dealing with health-related issues. Many people, especially when newly diagnosed, find comfort in knowing that others have had or are having...  go »

Action to Cure Kidney Cancer
ACKC is a grassroots organization established in 2003 by kidney cancer patients and their families/caregivers who are working to raise awareness and to ensure that kidney cancer receives the public and private funding required to identify and develop effective treatment modalities and to find a cure... go »

General Cancer Sites

Jun 11th, 2008: Canadian Partnership Against Cancer launches 30-year cancer prevention study
The Canadian Partnership Against Canada (CPAC) is the Federal Government's initiative to develop a cancer control strategy for Canadians. Kidney Cancer Canada is one of the key member organizations belonging to CCAN (Canadian Cancer Action Network), an affiliated organization through which all national cancer site groups raise their issues and concerns with CPAC.

Download CPAC's latest newsletter here: Summer 2008 CPAC Newsletter

Canadian Cancer SocietyA national, community-based organization of volunteers, whose mission is the eradication of cancer and the enhancement of the quality of life of people living with cancer. go »

CancerGuide.orgCancerGuide is different from most sites. It is primarily about helping you learn how to find the answers to your questions and especially to helping you learn what questions you need to ask. It also cover other aspects of coping from attitude to finances. With the big exception of Kidney Cancer... go »

Insurance-Canada.caInsurance-Canada.ca provides information to consumers about insurance in Canada including what to do if you have a complaint about your insurance company. go »

Financial Information for Cancer PatientsA brochure put out by the BC government with some information specific to BC, but most applicable to all Canadians go »

Your Health Care - Get InvolvedA brochure put out by the Ontario Ministry of Health providing patients with five "common sense" tips to engage and encourage them to be more involved in their health care. go »

Books

Kidney cancer patients have recommended the following resources:

  • "Incidental Findings (2nd Edition)" by Cynthia Chauhan available to patients at a minimal charge. Contact: cynthiachauhan@aol.com
  • "We Have Kidney Cancer" available as a free download from the Kidney Cancer Association.  The KCA will also ship a printed copy of this publication to Canadian patients free of charge.
  • "100 Questions and Answers About Kidney Cancer (Second Edition"".  This book can be purchased on line on this link or through Amazon.com
  • The MediFocus Guidebook on Renal Cell Carcinoma available through the MediFocus website.

What is Kidney Cancer?

The following websites are for informational purposes only and should not be used to replace the advice of your physician. Website links are provided as a convenience only.

Canada

Canadian Cancer Society -- Kidney Cancer

The Canadian Cancer Society website provides some information describing kidney cancer and support services available.  go »

United States

Mayo Clinic
Basic information on kidney cancer from the Mayo Clinic. go »

National Cancer Institute
Kidney cancer information from the US National Institutes of Health. go »

MedicineNet.com
MedicineNet provides doctor produced health and medical information. go »

United Kingdom

Kidney Cancer Resource
The free kidney and related urological cancers web site built & maintained by cancer patients with checking and generous assistance by health care experts (UK-based). go »

Treatments for Kidney Cancer

Drugs That Have Been Approved by Health Canada for mRCC

You will find information here about the treatments that have been approved by Health Canada to treat metastatic renal cell carcinoma more »

Drugs Available to Help Treat Specific Types of Metastases

The following drugs are helpful to treat specific types of metastases related to renal cell carcinoma more »

Coping with Kidney Cancer

Nova Scotia Support Programs
Group programs are available as part of the Capital Health Cancer Care Program in Nova Scotia.

Manitoba Support Programs
CancerCare Manitoba's Patient and Family Support Services has skilled professionals with many years of experience to help and support you and your loved ones in all these areas.

Saskatchewan Support Programs
A diagnosis of cancer brings many changes to your life and to your family. Social workers at the cancer centres in Saskatchewan are available to help through counseling and a variety of supportive services.

Alberta Support Programs
The Alberta Cancer Board's departments of Psychosocial and Spiritual Resources in Edmonton, at the Cross Cancer Institute, and in Calgary, at the Holy Cross site and the Tom Baker Cancer Centre, offer many programs to help you deal with the issues that may arise.

British Colombia Support Programs
The British Colombia Cancer Agency provides a variety of support programs throughout the province.

Québec Support Programs - Hope and Cope
Located at the Jewish General Hospital in Montréal, Québec, the mission of Hope & Cope is to help patients and their loved ones to cope with the physical, emotional and social effects of cancer diagnosis and treatment.

Ontario and Alberta Support Programs - Wellspring
Wellspring is a network of centres in Southern Ontario and Calgary (also coming soon to Halifax) that provides emotional and psychological support, free of charge, to individuals and families living with cancer. Wellspring provides a wide range of cancer support programs and services to serve the…

Living with Cancer
Information on different aspects of living with cancerfor MedLinePlus.

Coping with Cancer
Tips for dealing with cancer from the Canadian Cancer Society.

Drug Coverage Across Canada

Kidney Cancer Canada makes every attempt to track access to medications for rcc in every province. The document linked here provides information about which drugs can you can access through the public programs in each province or territory. If you have private drug insurance, you may have additional options.

Drug Access Chart by Province / Territory in Canada

 

Patient Assistance Programs Available in Canada

Patient Assistance Programs from manufacturers may help patients access medications. In some cases, you may be able to access a medication at no cost. In other cases, the Patient Assistance Program may help you with your private insurance co-pay amount. In addition to the information provided in the document linked here, you may find it helpful to speak with an Oncology Social Worker at your hospital.

Patient Assistance Programs in Canada

 

Complementary Treatments

Uinted States

Complementary/Integrative Medicine
M. D. Anderson Cancer Centers Complementary/Integrative Medicine Education Resources (CIMER) Web site is offered to help patients and physicians decide how best to integrate such therapies into their care.

Herbs and Botanicals
This information resource from Sloan-Kettering provides evidence-based information about herbs, botanicals, supplements, and more.

Glossary of Terms

This is a list of common terms used in reference to kidney cancer and is intended to help patients better understand their disease and deal more effectively with their health care providers. This list was reviewed by the KCC Medical Advisory Board.

Kidney Cancer - Glossary of Terms

 

Caregivers' Booklet

This booklet was written by Karen Ross who is a caregiver to someone with kidney cancer. Karen is also KCC's volunteer Director of NB, NS and PEI.

Other caregivers will find this booklet helpful as they go through their own journey.

 

Read the Booklet